Paths to Health and Independent Living for Underrepresented Populations

Session Number: DUP1
Track: Disabilities and Underrepresented Populations
Session Type: TIG Multipaper
Session Chair: Sarah von Schrader [Senior Reserach Associate - Cornell University]
Presenter 1: Danelle Marable [Director, Evaluation and Strategic Support - Massachusetts General Hospital]
Presenter 2: Michelle Mitchell [Executive Director - Partnerships For Health, LLC]
Presenter 3: Gretchen Clarke [Manager, Research Science - ICF]
Presenter 4: Beth J. Michel, MPH [Project Delivery Specialist II - Deloitte]
Presentation 1 Additional Author: Kelly Washburn [Project Manager, Evaluation and Strategic Support - Massachusetts General Hospital]
Presentation 1 Additional Author: Cassandra L. Tavaras, MGH Center for Community Health Improvement [Project Manager ]
Presentation 3 Additional Author: Kristen Hudgins [Social Science Analyst - Administration for Community Living]
Presentation 3 Additional Author: Marnie House [ICF Macro]
Presentation 4 Additional Author: Kristen Hudgins [Social Science Analyst - Administration for Community Living]
Time: Nov 15, 2019 (02:15 PM - 03:15 PM)
Room: Hilton Marquette I

Abstract 1 Title: Promoting Equity and Diversity in a Community Health Needs Assessment
Presentation Abstract 1:

It’s not easy involving underrepresented populations in community health needs assessments (CHNA).  You must be deliberate in the inclusion of marginalized, stigmatized, or overlooked community segments to ensure their voice is heard.  A CHNA is a systematic examination of the health status indicators for a given population that is used to identify key problems and assets in a community.  The ultimate goal of a community health assessment is to develop strategies to address the community’s health needs and identified issues. This session will review challenges and lessons learned from a 2019 Community Health Needs Assessment conducted jointly by 3 communities outside of Boston. To promote equity and diversity, we engaged specific stakeholders, promoted the CHNA through multiple media channels in multiple languages, ensured populations were included throughout the process, and created reports that were easy to read and understand. Examples will be used throughout the presentation.


Abstract 2 Title: Understanding Cancer from an African Immigrant Perspective: A Participatory Approach
Presentation Abstract 2:

Early detection and screening is one of the most effective evidence-based public health strategies for reducing cancer morbidity and mortality. However cultural beliefs, myths surrounding screening, and the root cause of cancer have been found to negate programs. Understanding cancer from the lived experience of an African Immigrant perspective is critical for effective program design. Evaluators partnered with an ethnic-based community organization to implement the study within a community-based participatory research framework. Consent was obtained verbally using a ‘teach-back’ methodology, Community Health Workers conducted the field work, all instruments were translated into French, Arabic, Somali, English. A high response rate was achieved even at 3 month follow-up. Findings have been used to inform program design and implementation.


Abstract 3 Title: Working Together for Change: Using Participatory Action Research (PAR) from Design to Dissemination in an Evaluation with Older Americans
Presentation Abstract 3:

ICF, in partnership with the Administration of Community Living (ACL), is using a participatory action research (PAR) framework to engage and empower older Americans in the Evaluation of the ACL Older American’s Act Title VI Programs which provide nutrition, supportive, and caregiver support services to American Indian, Alaska Native, and Native Hawaiian (AI/AN/NH) elders and their caregivers. A key component of PAR is the dissemination of findings in a way that is useful, relevant, and approachable for all stakeholders. This paper outlines the steps we have taken through year three to meaningfully engage participants at each step of the evaluation process, from planning to dissemination, to ensure useful and relevant materials that will live ‘off the shelf’ and are grounded in the work of the Title VI communities. This session will provide insight for other researchers in steps they can take to likewise ensure their evaluations leave no one behind.  


Abstract 4 Title: Applying Indigenous Older Americans Needs and Perspectives to Evaluation – a Path to Improve Consultation, Methods and Practices
Presentation Abstract 4:

This demonstration will present preliminary lessons learned from the Older American’s Act Title VI Program redesign of the Program Performance Report (PPR). The PPR illustrates the nutrition, supportive, and caregiver support services provided to American Indian, Alaska Native, and Native Hawaiian elders. The Administration for Community Living (ACL) is redesigning the system, using a participatory framework, to collection Title VI Program performance data and to better meet the needs of ACL and the programs serving Older Americans. Program performance information can be a powerful tool for ACL and the grantees when it collects meaningful measures of program success. Program staff and stakeholder engagement led to identifying the most relevant PPR measures to ACL and stakeholders. This session will provide an overview of key considerations and lessons learned in the redesign process for a national program performance reporting system to be rigorous and practical while engaging staff serving Older Americans.


Presentation 4 Other Authors: Cynthia LaCounte
Audience Level: All Audiences

Session Abstract (150 words): 

Paths to Health and Independent Living for Underrepresented Populations